Charity Registration No: 1077578

Publications

The following abstracts and publications have been published since the start of the research in the North East of England and form part of the ongoing relationship with other contributors to the overall research projects.

Butler A.G. (1995) The socio-economic implications of dystonia. The Dystonia Society Newsletter. ; 19 ; 4-5 and 20 ; 4-5 and 21 ; 5-6. London. TDS.

Butler A.G. (1996) The social and economic implications of dystonia. European Journal of Neurology ; 3 : 79.

Butler A.G. (1997) The epidemiology of Spasmodic Torticollis in North East England. In: The National Spasmodic Torticollis Association Annual Symposium in Nashville, Tennessee on 9th November 1997.

Butler A.G, Duffey P.O.F. (1996a) The epidemiological survey of dystonia in the North East of England. European Journal of Neurology : 3 : 28

Butler A.G, Duffey P.O.F. (1996b) An epidemiological survey of dystonia at Darlington Memorial Hospital. European Journal of Neurology : 3 :79

Butler A.G, Duffey P.O.F. (1997) The impact of focal dystonia on the working life of musicians. Performing Arts Medicine News ; BAPAM. Proceedings of the International Conference. G1.16-G1.24.

Butler A.G, Duffey P.O.F. Hawthorne M.R, Barnes M.P. (1998) The socioeconomic implications of dystonia. In: Fahn S, Marsden C.D and DeLong M.R. eds., Advances in Neurology, Vol. 78 : Dystonia 3. Philadelphia : Lippincott-Raven. 349-358.

Butler A.G, Hawthorne M.R, Duffey P.O.F, Gudex C.M. (1995) A comparison using a number of different rating scales measuring the effectiveness of Botulinum Toxin therapy in the treatment of dystonia and secondary dystonic spasms. Movement Disorders; 10 : 398. Duffey P.O.F, Butler A.G, Hawthorne M.R, Barnes M.P. (1998) The epidemiology of primary dystonia in the north of England. In: Fahn S. Marsden C.D. and DeLong M.R. eds. Advances in Neurology, Vol. 78 : Dystonia 3. Philadelphia : Lippincott-Raven. 121-126.

Duffey P.O.F, Butler A.G, Hawthorne M.R, Barnes M.P. (1999) The prevalence and spectrum of primary dystonia in an English town. Submitted for publication to BMJ in 1999. Yet to be peer reviewed.

Medd D.Y. (1996) Counselling for dystonia patients. Part 1. The Dystonia Society Newsletter. ; 24 ; 5-6. London. TDS. Medd D.Y. (1997) Counselling for dystonia patients. Part 2. The Dystonia Society Newsletter. ; 25 ; 5-6. London. TDS.

Medd D.Y. (1997) Dystonia and hypnosis. Contemporary Hypnosis : Vol 14, No 2, 121-125.

Medd D.Y. (1999) Clinical Report : A single-case study of generalised dystonia and hypnosis, with unexpected immobility and an untoward effect. Contemporary Hypnosis : Vol 16, No 1, 45-48.

Medd D.Y. (1999) Hypnosis with selected movement disorders. Contemporary Hypnosis : Vol 16, No 2, 81-86.

Gudex C.M, Hawthorne M.R, Butler A.G, Duffey P.O.F. (1995) A cost-utility analysis of Botulinum Toxin therapy in the treatment of dystonia. Movement Disorders : 10 ; 373.

Gudex C.M, Hawthorne M.R, Butler A.G, Duffey P.O.F. (1997) Measuring patient benefit from Botulinum Toxin in the treatment of dystonia : Feasibility of Cost-Utility Analysis. PharmacoEconomics : 12 : 6 ; 675-684.

Gudex C.M, Hawthorne M.R, Butler A.G, Duffey P.O.F. (1998) Effect of dystonia and Botulinum Toxin treatment on health-related Quality of Life. Movement Disorders : 13 : 6 ; 941-946.

Whitaker J, Butler A.G, Barnes M.P. (1998) Botulinum Toxin treatment for people with dystonia by an outreach nurse practitioner - a comparative study. Report to the Northern and Yorkshire Regional Health Authority (NYRHA).

Whitaker J, Butler A.G, Semlyen J.K, Barnes M.P. (1999) Botulinum Toxin treatment for people with dystonia treated by an outreach nurse practitioner - a comparative study. The Archives of Physical Medicine and Rehabilitation 1999.

Butler A.G, Duffey P.O.F, Hawthorne M.R, Barnes M.P. An Epidemiological Survey of Dystonia (ESD) Within the Entire Population of Northeast England over the Past 9 Years. Due to be published in the latest Advances in Neurology, Vol. ?? : Dystonia 4 by Lippincott-Raven.

Butler A.G, Duffey P.O.F, Hawthorne M.R, Barnes M.P. The impact of Focal Dystonia on the working life of musicians within the UK. Due to be published in the latest Advances in Neurology, Vol. ?? : Dystonia 4 by Lippincott-Raven.

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